| # | | Name | Source | Ver | Description |
| 1 | | AU Primary Care Family Member History | au.csiro.fhir.au-primarycare#current | R4 | Summary or persistent information about significant health and related issues in family members.
**Usage**
Use to record a summary of information about problems or diagnoses found in family members. This information may be used to contribute to the identification of a current health problem, assessment of future risk from familial problems or conditions, or to initiate preventive health activities.
Traditionally the scope of family history has been focused on genetic factors or biomarkers as indicators of risk or potential risk. The scope of this item includes both recording of problems or diagnoses that have an inheritable origin as well as those that are not directly inheritable but influenced by the domestic setting, including psycho-social or environmental factors. Examples include exposure to toxins in the family environment, domestic violence, sexual abuse, alcoholism and other addictions.
Non-genetic family members can include adopted or long term fostered children, those related by marriage, or other unrelated individuals who participate in the regular life and influence of the family.
It may be necessary to identify each family member specifically and not just by the relationship to the individual. For example, while there will be only one maternal grandmother, there may be many female maternal cousins. This may be required to ensure that a pedigree chart is accurate. It will also enable accurate amendments to the record for each identified family member. If the record is private and will not be shared, for reasons of clarity it may be preferable to record the relative's actual name. If the record, or part of the record, is to be shared, it may be more appropriate for the family member to be identified by a unique label or alias.
Record as a single instance in a health record; updated and revised over time as a new version. |
| 2 | | Family Cancer History | arkhn.fhir.uv.osiris#current | R4 | History of cancer in an Onco Patient Family. |
| 3 | | Family Member History (PS-CA) | ca.infoway.io.psca#1.0.1-alpha3 | R4 | This profile represents the constraints applied to the FamilyMemberHistory resource by the PS-CA project. Currently, there is no equivalent IPS UV profile and no ISO CEN IPS 17269 requirements for a family history section. This profile is considered a draft version, and is informed and created as per the requirements of the first jurisdiction (i.e. Alberta) to pilot its use in patient summary within jurisdictional context. The constraints have been compared against other Family Member History FHIR profiles in Canada (OMD Core Data Set, Telus Patient Chart) and Internationally (Swiss Mednet, CareConnect UK, NDHM India) and share many constraints in common with those profiles but represent the minimum requirements as they are known in Canada today. This profile is expected to be refined further as more jurisdictional requirements are defined and as more is known about use in the international patient summary space. |
| 4 | | FamilyMemberHistory | ndhm.in#current | R4 | This profile sets minimum expectations for the FamilyMemberHistory resource for searching and fetching significant health conditions of a person related to the patient in the context of care. |
| 5 | | FamilyMemberHistory (Gatekeeper) | hl7.eu.fhir.gk#current | R4 | This profile defines how to represent FamilyMemberHistory (Prescribed Medicines) in FHIR in Gatekeeper. |
| 6 | | MedNet Interface (MNI) - Family Member History | swiss.mednet.fhir#0.15.0 | R4 | MedNet Interface (MNI) - Family Member History Profile |
| 7 | | Multiple Chronic Condition Care Plan Family History | hl7.fhir.us.mcc#current | R4 | This profile constrains the FHIR Family Member History Resource for use in the MCC FHIR Care Plan or other FHIR Care Plans. |
| 8 | | QICore FamilyMemberHistory | hl7.fhir.us.qicore#current | R4 | Profile of Family Member History for decision support/quality metrics. Defines the core set of elements and extensions for quality rule and measure authors. |
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| FamilyMemberHistory |
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| FamilyMemberHistory.deceasedAge |
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| FamilyMemberHistory.deceasedAge.code |
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C |
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| FamilyMemberHistory.deceasedAge.system |
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C F |
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| FamilyMemberHistory.deceasedAge.unit |
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| FamilyMemberHistory.deceasedAge.value |
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C |
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| FamilyMemberHistory.deceasedBoolean |
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| FamilyMemberHistory.ageAge |
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| FamilyMemberHistory.ageAge.code |
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C |
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| FamilyMemberHistory.ageAge.system |
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C F |
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| FamilyMemberHistory.ageAge.unit |
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| FamilyMemberHistory.ageAge.value |
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C |
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| FamilyMemberHistory.id |
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D |
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| FamilyMemberHistory.reasonCode |
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| FamilyMemberHistory.reasonReference |
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| FamilyMemberHistory.meta |
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| FamilyMemberHistory.implicitRules |
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| FamilyMemberHistory.language |
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| FamilyMemberHistory.text |
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| FamilyMemberHistory.contained |
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| FamilyMemberHistory.extension |
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S (2) |
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| FamilyMemberHistory.modifierExtension |
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| FamilyMemberHistory.identifier |
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| FamilyMemberHistory.instantiatesCanonical |
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| FamilyMemberHistory.instantiatesUri |
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| FamilyMemberHistory.status |
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F |
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| FamilyMemberHistory.dataAbsentReason |
B M |
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| FamilyMemberHistory.patient |
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D |
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| FamilyMemberHistory.patient.reference |
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C |
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| FamilyMemberHistory.date |
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D |
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| FamilyMemberHistory.participant |
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| FamilyMemberHistory.participant.extension |
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| FamilyMemberHistory.participant.modifierExtension |
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| FamilyMemberHistory.participant.function |
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| FamilyMemberHistory.participant.actor |
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| FamilyMemberHistory.name |
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| FamilyMemberHistory.relationship |
B M |
B M |
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B M |
B M |
| FamilyMemberHistory.relationship.text |
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C |
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| FamilyMemberHistory.relationship.coding |
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S C (2) |
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| FamilyMemberHistory.relationship.coding.system |
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C F |
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| FamilyMemberHistory.relationship.coding.display |
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C |
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| FamilyMemberHistory.relationship.coding.code |
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C |
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C |
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| FamilyMemberHistory.sex |
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| FamilyMemberHistory.born[x] |
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| FamilyMemberHistory.age[x] |
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S C (2) |
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| FamilyMemberHistory.estimatedAge |
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| FamilyMemberHistory.deceased[x] |
S C (4) |
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S C (2) |
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| FamilyMemberHistory.reason |
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| FamilyMemberHistory.note |
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| FamilyMemberHistory.note.text |
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D |
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| FamilyMemberHistory.condition |
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D |
C |
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C |
C |
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| FamilyMemberHistory.condition.extension |
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S C B M (2) |
| FamilyMemberHistory.condition.modifierExtension |
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| FamilyMemberHistory.condition.code |
B M |
B M |
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C |
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B M |
| FamilyMemberHistory.condition.code.text |
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C |
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| FamilyMemberHistory.condition.code.coding |
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S C (4) |
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| FamilyMemberHistory.condition.code.coding.display |
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C |
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(3) |
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| FamilyMemberHistory.condition.code.coding.code |
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C |
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C (3) |
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| FamilyMemberHistory.condition.code.coding.system |
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F |
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C F (3) |
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| FamilyMemberHistory.condition.outcome |
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| FamilyMemberHistory.condition.contributedToDeath |
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| FamilyMemberHistory.condition.onset[x] |
S C (3) |
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D |
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| FamilyMemberHistory.condition.note |
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| FamilyMemberHistory.condition.note.text |
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| FamilyMemberHistory.procedure |
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| FamilyMemberHistory.procedure.extension |
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| FamilyMemberHistory.procedure.modifierExtension |
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| FamilyMemberHistory.procedure.code |
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| FamilyMemberHistory.procedure.outcome |
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| FamilyMemberHistory.procedure.contributedToDeath |
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| FamilyMemberHistory.procedure.performed[x] |
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| FamilyMemberHistory.procedure.note |
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| FamilyMemberHistory.reasonCode.coding |
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| FamilyMemberHistory.reasonCode.coding.display |
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C |
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| FamilyMemberHistory.reasonCode.coding.code |
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C |
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| FamilyMemberHistory.reasonCode.coding.system |
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F |
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| FamilyMemberHistory.reasonCode.text |
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